Category Archives: Down syndrome

Down syndrome

“Not yet!”

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It’s always interesting to find out what phrase Kyle will pick up next in his growing vocabulary. The ones we rejoice about most are the phrases that further his independence or allow him to express himself more clearly. Kyle’s newest addition is surely a cause for celebration as it replaces his previous way to express the same idea–by screaming. Where… Read more »

aWEARness

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Especially during Down syndrome awareness month, I love to see all the ways people wear their awareness. There are Down syndrome shirts, like the one I am wearing above, available at specialmiracles.com. That website also features Down syndrome jewelry, zipper pulls, and key chains. Some people sport blue and yellow nail art, and others even get Down syndrome awareness tattoos…. Read more »

Learning to read

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It started over a year ago with Kyle’s amazing *surprise* ability to recognize the letters in the alphabet. One day he pointed out letters on my shirt, and to my surprise, he got them right! In this video, he shows that he knows letters and has quite the sense of humor: Weeks ago, he impressed his family by reading sight… Read more »

Kyle’s hunger strike, continued

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When Kyle’s hunger strike at school was in full swing (see previous entry), I was quickly writing some suggestions in his communication notebook before school. I nearly wrote that Kyle does better eating at home when he has the iPad on the table, and meant to ask if they could use one at school during meals. Then I stopped. Did… Read more »

Guessing games

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A few weeks ago, Kyle was sick with a stomach bug. He had a day or two of relief from that before coming down with a cold. The illnesses affected his behavior in some significant ways. Although now we can attribute his mysterious behaviors to being sick, for those two weeks I spent an unhealthy amount of time wondering and… Read more »

A hug to cure all ills

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  This post is rather self-explanatory. Kyle’s hugs have a power and a life force. He gives them readily. He receives them gladly. No matter your mood, a hug from Kyle means instant calm. His love runs deep within his embraces. I will not play tug o’ war. I’d rather play hug o’ war. Where everyone hugs instead of tugs,… Read more »