Category Archives: Family

Parenting and Family

Holiday Joy–what a difference a year makes!

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Last year after Christmas, I posted an exasperated question on a Down syndrome message board asking, “How do we do this? How do we get through the holidays with our sensory kids who thrive on routine? How do we keep our sanity at holiday parties where our kids refuse to eat unfamiliar foods, tip over chairs and decorations, and cry… Read more »

The tale of an unnecessary NICU stay

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I left you with a few tantalizing tidbits in The Post-Birth Experience, and now I will fill in the blanks. The morning after Mr. S was born, he had an echo-cardiogram. Kyle’s cardiologist suggested that everyone in the family get tested for Kyle’s heart defect (bicuspid aortic valve) because it runs in families. I got the baby’s echo at birth… Read more »

The Post-Birth Experience: expectations vs. reality

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“First is the worst, second is the best…” Having school-aged children, I hear that rhyme often. And for me, it has a bit of truth in it when related to my four postpartum experiences. After my first birth, I had to share a room. It borders on barbaric, forcing a woman who just had a baby to share her room… Read more »

When Clubfoot Comes Back

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(continued from “The best kind of deformity”) Three and a half years after Kyle’s clubbed feet were completely corrected, and six months after our triumphant graduation from the dreaded bar and shoes nighttime orthotic, Daddy took him in for a checkup with his Orthopedic doctor, Dr. Miracle Worker. We were expecting the usual good report, but were disappointed to hear… Read more »

Clubfoot: “The best kind of deformity.”

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For 1/2 of my 3rd pregnancy, I was operating under the assumption that my child did not have Down syndrome (incorrect) and did have bilateral clubfoot (correct). My feelings the day of the ultrasound, as I wrote in the diagnosis story, were of grief and fear of the unknown.  I didn’t go crazy doing research because Dr. Google can be… Read more »