Communicating daily with school

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When your child doesn’t have the vocabulary to describe the day’s events, a parent-teacher log is a great method for communicating daily with school. There is no doubt, despite all my wonder and awe at my son’s Village, that in reality his Village is overworked and overbooked. From the first day I sent a notebook in Kyle’s backpack for communicating… Read more »

A Blog About a Family

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family

For Elysium blog chronicles the journey of a mother through home, family, parenting, disability, and Down syndrome. The for Elysium Family: Katie (blog author): Thirtysomething. Loves the outdoors, gardening, reading, and creative pursuits E: Oldest child, only daughter, double digits. Loves sports, science, and singing Bud: Oldest boy, too close in age to his big sister. Loves Minecraft, video games,… Read more »

Our annual reality check

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It takes some getting used to, and in all honesty, I am still working on it: coordinating my expectations with Kyle’s developmental timeline. As Kyle is the third of four kids, I have a general idea of when to expect skills to emerge for a typical kid. Up until about 5 months, Kyle seemed to be right on track. But… Read more »

The aftermath of Down syndrome abortion

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The emotional aftermath of abortion is becoming a worldwide epidemic. Although most of the women who endure abortion are suffering in silence, many find comfort by sharing their grief with others in online public, anonymous forums. I focus a lot on the Down syndrome-related aspects of why I believe babies with Down syndrome should not be terminated. However, in taking… Read more »

Drawing the Line (the reality of The Eradication)

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Down syndrome termination

My fictional story The Eradication is closer to reality than you might think. Scientists have discovered a genetic mutation that leads to the development of autism. Less than two weeks ago, a study was released that shows a different genetic mutation plus lead exposure (found in everything from toys to vacuum cleaner cords) increases the chances of a child developing… Read more »

The Eradication (a fiction)

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As an old woman, I am privileged to revisit past events with an objective lens. It was a different world then. Early in the year, 2018: I was 38 years old and pregnant with my fifth baby. If you’ve seen one baby’s ultrasound you’ve seen them all, so my husband remained home with the other children while I attended the… Read more »