Tag Archives: advocacy

Waxing Philosophical: musings about prenatal genetic testing

On one of my frequented message boards, every time a person posts anything related to Down syndrome a woman chimes in with negative links and information to “keep the conversation balanced” about Down syndrome. Based on her personal experience of having a congenital heart defect (CHD), she purports that it’s an unacceptable diagnosis to have Down syndrome and CHD. Unacceptable… Read more »

Changing the conversation on abortion and Down syndrome

Imagine you are a young pregnant mother. You get all the screenings recommended by your OB/GYN, and one comes back with raised odds that your baby will have Down syndrome. You are scared. You ask your doctor for more information. She tells you that if your baby has Down syndrome, there is a good chance he won’t survive, or if… Read more »

Who is going to save them?

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I have mentioned in the past that I am a part of an important organization called Saving Down syndrome. We work to advocate for the lives of people with Down syndrome, both before birth and after. The leaders of Saving Down syndrome created a new video in time for World Down Syndrome Day (March 21) that features countless reasons why… Read more »

The Evolution of a Pro-Lifer

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As I have mentioned before, I was raised in a conservative Catholic home. My grandparents had a bumper sticker that read, “I vote pro-life.” Most of my friends were Catholic, and I was comfortable following the herd mentality. When I went to college, I started to think more independently. While still pro-life, I had issues with conservative ideology. I started… Read more »

Hope for the Future

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At work I heard one of our patrons talking to another patron about a family member’s involvement in Special Olympics. I politely and enthusiastically interjected that I have a 4 year old with Down syndrome and am looking forward to when he’s old enough for Special Olympics. She smiled a knowing smile, said she was talking about her son, and… Read more »

An Unveiling and Many Thanks

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When I started to see all the gorgeous photos posted for Changing the Face of Beauty‘s #IMREADY for #15in2015 campaign challenging 15 retailers to feature models with disabilities in their advertising in 2015, I felt compelled to share the faces with the world via a video. The campaign was started by the founders and members of Changing the Face of… Read more »