Tag Archives: birth story

The remarkable day of Kyle’s birth… 5 short years ago.

The Gift of Grief: How a Death Helped Me Process My Son’s Down Syndrome Diagnosis

gift of grief

From the diagnosis stories I have read in the years since my son Kyle was born with Down syndrome, I appear to be one of a small minority who did not feel grief after a child’s official diagnosis. I could never quite figure out why. I chalked my lack of grief up to previous positive interactions with people with Down… Read more »

The tale of an unnecessary NICU stay

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I left you with a few tantalizing tidbits in The Post-Birth Experience, and now I will fill in the blanks. The morning after Mr. S was born, he had an echo-cardiogram. Kyle’s cardiologist suggested that everyone in the family get tested for Kyle’s heart defect (bicuspid aortic valve) because it runs in families. I got the baby’s echo at birth… Read more »

The Post-Birth Experience: expectations vs. reality

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“First is the worst, second is the best…” Having school-aged children, I hear that rhyme often. And for me, it has a bit of truth in it when related to my four postpartum experiences. After my first birth, I had to share a room. It borders on barbaric, forcing a woman who just had a baby to share her room… Read more »

My baby’s Down syndrome diagnosis story

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The question I get most often (and if they aren’t asking about it, they’re wondering) is “did you know about the Down syndrome before he was born?” This question doesn’t bother me, but it drives some people crazy because it implies that if we had known, we would/should have “done something” about it. I don’t think that most of the… Read more »