Tag Archives: diagnosis

Waxing Philosophical: musings about prenatal genetic testing

On one of my frequented message boards, every time a person posts anything related to Down syndrome a woman chimes in with negative links and information to “keep the conversation balanced” about Down syndrome. Based on her personal experience of having a congenital heart defect (CHD), she purports that it’s an unacceptable diagnosis to have Down syndrome and CHD. Unacceptable… Read more »

The Gift of Grief: How a Death Helped Me Process My Son’s Down Syndrome Diagnosis

gift of grief

From the diagnosis stories I have read in the years since my son Kyle was born with Down syndrome, I appear to be one of a small minority who did not feel grief after a child’s official diagnosis. I could never quite figure out why. I chalked my lack of grief up to previous positive interactions with people with Down… Read more »