Tag Archives: disability

Truth: my son’s Down syndrome is not a detriment to his siblings

In thinking about this post, I figured I would go straight to the source and ask my older kids how they feel about having a brother with Down syndrome. The exchange went like this… Katie: I want to write a blog article on what siblings think about having a brother with Down syndrome. E (age 9): You have A BLOG?!!!… Read more »

I was not born an advocate.

      4 Comments on I was not born an advocate.

As a person who is naturally hesitant to call people out or stand up for myself (often because I don’t think of the words until long after the situation has passed), I have had to grow into the role of advocate for my kids, especially Kyle. Slowly, through key situations, I have found my voice as defender. When Kyle was… Read more »

When Clubfoot Comes Back

      7 Comments on When Clubfoot Comes Back

(continued from “The best kind of deformity”) Three and a half years after Kyle’s clubbed feet were completely corrected, and six months after our triumphant graduation from the dreaded bar and shoes nighttime orthotic, Daddy took him in for a checkup with his Orthopedic doctor, Dr. Miracle Worker. We were expecting the usual good report, but were disappointed to hear… Read more »

Magnificent milestones

      No Comments on Magnificent milestones

Clubfoot: “The best kind of deformity.”

      No Comments on Clubfoot: “The best kind of deformity.”

For 1/2 of my 3rd pregnancy, I was operating under the assumption that my child did not have Down syndrome (incorrect) and did have bilateral clubfoot (correct). My feelings the day of the ultrasound, as I wrote in the diagnosis story, were of grief and fear of the unknown.  I didn’t go crazy doing research because Dr. Google can be… Read more »

My baby’s Down syndrome diagnosis story

      6 Comments on My baby’s Down syndrome diagnosis story

The question I get most often (and if they aren’t asking about it, they’re wondering) is “did you know about the Down syndrome before he was born?” This question doesn’t bother me, but it drives some people crazy because it implies that if we had known, we would/should have “done something” about it. I don’t think that most of the… Read more »