Tag Archives: doctors

To the doctor who called my son a “Downs patient”

I feel a little sheepish hiding behind the safety of my blog. If it bothered me, I should have corrected your language at the time. But I didn’t want to be a party pooper. We were having such a positive appointment. You were explaining why Kyle might not need to wear orthotics in his shoes anymore. At odds with what… Read more »

Changing the conversation on abortion and Down syndrome

Imagine you are a young pregnant mother. You get all the screenings recommended by your OB/GYN, and one comes back with raised odds that your baby will have Down syndrome. You are scared. You ask your doctor for more information. She tells you that if your baby has Down syndrome, there is a good chance he won’t survive, or if… Read more »

The tale of an unnecessary NICU stay

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I left you with a few tantalizing tidbits in The Post-Birth Experience, and now I will fill in the blanks. The morning after Mr. S was born, he had an echo-cardiogram. Kyle’s cardiologist suggested that everyone in the family get tested for Kyle’s heart defect (bicuspid aortic valve) because it runs in families. I got the baby’s echo at birth… Read more »

What They’re Missing

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I recently read an informative article entitled “Don’t abort based on MaterniT21.” While the author Mark Leach is quite right–the new non-invasive prenatal tests for Down syndrome are only screening tests, not diagnostic–I am very torn. If I were to say it is tragic that 17% of women are aborting solely based on a positive indication of Down syndrome from… Read more »

I was not born an advocate.

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As a person who is naturally hesitant to call people out or stand up for myself (often because I don’t think of the words until long after the situation has passed), I have had to grow into the role of advocate for my kids, especially Kyle. Slowly, through key situations, I have found my voice as defender. When Kyle was… Read more »

Clubfoot: “The best kind of deformity.”

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For 1/2 of my 3rd pregnancy, I was operating under the assumption that my child did not have Down syndrome (incorrect) and did have bilateral clubfoot (correct). My feelings the day of the ultrasound, as I wrote in the diagnosis story, were of grief and fear of the unknown.  I didn’t go crazy doing research because Dr. Google can be… Read more »