Tag Archives: family

Kyle’s hunger strike, continued

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When Kyle’s hunger strike at school was in full swing (see previous entry), I was quickly writing some suggestions in his communication notebook before school. I nearly wrote that Kyle does better eating at home when he has the iPad on the table, and meant to ask if they could use one at school during meals. Then I stopped. Did… Read more »

Guessing games

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A few weeks ago, Kyle was sick with a stomach bug. He had a day or two of relief from that before coming down with a cold. The illnesses affected his behavior in some significant ways. Although now we can attribute his mysterious behaviors to being sick, for those two weeks I spent an unhealthy amount of time wondering and… Read more »

A hug to cure all ills

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  This post is rather self-explanatory. Kyle’s hugs have a power and a life force. He gives them readily. He receives them gladly. No matter your mood, a hug from Kyle means instant calm. His love runs deep within his embraces. I will not play tug o’ war. I’d rather play hug o’ war. Where everyone hugs instead of tugs,… Read more »

Steep & creaky farmhouse stairs

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The stairs in our house are steep. So steep that when Kyle first learned to walk, his occupational therapist told us that she didn’t know a way to teach him to walk down them. Physically, it was nearly impossible to either walk forwards or crawl backwards considering the length of his legs. So for over a year, we carried Kyle… Read more »

Bedtime: the last small moment of the day

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Music: the map of memories & soundtrack of life

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music map memories

Music has an undeniable influence on memory. For one, significant moments in our lives are connected to the music we listened to at the time. The reverse is also true; if you want to remember something, set it to music. When my high school classmates complained about having to memorize the Declaration of Independence, I didn’t commiserate. My mom introduced… Read more »